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DiipuSurotu

Banned
Oct 25, 2017
53,148
She didn't say a word — and that only made her message resonate more powerfully. Valedictorian Elizabeth Bonker recently delivered the commencement speech at Rollins College in Florida, urging her classmates to serve others and embrace the power of sharing.

Bonker, who is affected by nonspeaking autism, hasn't spoken since she was 15 months old. But thanks to an accepting attitude from her peers and teachers and help from technology, she has overcome many challenges and graduated at the top of her class at the Orland0-area school.
Bonker used text-to-speech software to deliver the commencement address — an honor for which she was chosen by her fellow valedictorians.

"I have typed this speech with one finger with a communication partner holding a keyboard," she said. "I am one of the lucky few nonspeaking autistics who have been taught to type. That one critical intervention unlocked my mind from its silent cage, enabling me to communicate and to be educated like my hero Helen Keller."
After graduating, Bonker plans to use what she has learned to help people who face situations like hers.

"There are 31 million nonspeakers with autism in the world who are locked in a silent cage," she said. Her life's work, she said, will be to help them express themselves.
Bonker recently launched a nonprofit organization, Communication 4 ALL, which aims to break down the barriers facing nonspeakers by providing communication resources, particularly in schools.

She'll also work to educate the public about the millions of people affected by nonspeaking autism. As she has stressed in the past, it is not a cognitive or intellectual disorder.

An estimated 25–30% of children with autism spectrum disorder are nonspeaking or minimally speaking, according to recent studies.



Source:
www.npr.org

A nonspeaking valedictorian with autism gives her college's commencement speech

A computer keyboard "unlocked my mind from its silent cage," Elizabeth Bonker told her fellow graduates. She urged them to serve others, citing Rollins College's most famous alum: Fred Rogers.

Full transcript here:
www.rollins.edu

Be the Light: Elizabeth Bonker’s 2022 Commencement Address

Rollins College valedictorian Elizabeth Bonker ’22, who is affected by non-speaking autism and communicates solely by typing, urges her fellow graduates to use their voices, serve others, and see the value in everyone they meet in her valedictory address.
 

Biestmann

Member
Oct 25, 2017
7,412
I have to admit, I didn't know this was a thing. I have some reading to do. She seems incredibly inspiring, and I hope all her dreams come true
 
Oct 30, 2017
15,278
We all have been given so much, including the freedom to choose our own way. Personally, I have struggled my whole life with not being heard or accepted. A story on the front page of our local newspaper reported how the principal at my high school told a staff member, "The retard can't be valedictorian."

The speech is beautiful, but FUCK this principal. It takes so much strength and effort to overcome organic and environmental barriers. Even when those barriers are the words of "leaders."
 

Vashetti

Member
Oct 27, 2017
6,552
I realise autism is a spectrum, but I hadn't heard or realised this could be a thing. Do we know why they're non-speaking or minimally speaking?

No offence intended.
 

djplaeskool

Member
Oct 26, 2017
19,735
Bravo
Just because you struggle to speak, doesn't mean you don't have something powerful to say.
 
Oct 30, 2017
15,278
I realise autism is a spectrum, but I hadn't heard or realised this could be a thing. Do we know why they're non-speaking or minimally speaking?

No offence intended.
Apparently it is a neuromotor issue. She also states that she can't tie her shoes or button a shirt. It seems like her brain just can't communicate to other parts of her body.
 

CatAssTrophy

Member
Dec 4, 2017
7,611
Texas
I have to admit, I didn't know this was a thing. I have some reading to do. She seems incredibly inspiring, and I hope all her dreams come true

Same. There's way too much I don't understand about autism in general and it's high time I fill in a lot of these knowledge gaps. Especially as I encounter more and more folks with autism IRL.
 

John Rabbit

Member
Oct 25, 2017
10,094
I legitimately cannot imagine what a struggle it must be to be able to think, feel, and process the world with typical clarity but not able to say any of it. Astounding that 31 million people deal with it everyday. Great speech.
 
Oct 25, 2017
111
Tri-State
Same. There's way too much I don't understand about autism in general and it's high time I fill in a lot of these knowledge gaps. Especially as I encounter more and more folks with autism IRL.
Because they often forced by neurotypical society to mask and blend in to hid their autism spectrum. It is extreme exhausting to do.

I have to admit, I didn't know this was a thing. I have some reading to do. She seems incredibly inspiring, and I hope all her dreams come true

I realise autism is a spectrum, but I hadn't heard or realised this could be a thing. Do we know why they're non-speaking or minimally speaking?

No offence intended.
You both need to read The Reason I Jump then it was written by an nonverbal person with autism.
 

Unicorn

One Winged Slayer
Member
Oct 29, 2017
9,528
Facilitated Communication is bunk science unfortunately. Every study conducted shows the 'keyboard assistant' is influence/guiding/plagiarizing the 'thoughts' and 'expression' of those it is meant to give a voice to. FUNCTIONAL communication training with devices such as Proloquo on an iPad has empirical evidence and studies backing its validity.

"I have typed this speech with one finger with a communication partner holding a keyboard,"
if it real, get rid of the other human 'holding' the keyboard.
 
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collige

Member
Oct 31, 2017
12,772
Fuck that principal, I hope they got dirty looks after that part if they were present. I wonder what text to speech software she used; there's definitely been progress over the years at making them sound more natural.

Facilitated Communication is bunk science unfortunately. Every study conducted shows the 'keyboard assistant' is influence/guiding/plagiarizing the 'thoughts' and 'expression' of those it is meant to give a voice to. FUNCTIONAL communication training with devices such as Proloquo on an iPad has empirical evidence and studies backing its validity.
I'm not sure what the relevance of this is to the OP, I can't find any mention of the word "facilitated" in their the article or their website.
 

ElectricBlanketFire

What year is this?
Member
Oct 25, 2017
31,831
I have to admit, I didn't know this was a thing. I have some reading to do. She seems incredibly inspiring, and I hope all her dreams come true

I realise autism is a spectrum, but I hadn't heard or realised this could be a thing. Do we know why they're non-speaking or minimally speaking?

No offence intended.

My son has selective mutism which mimics autism but is not on the spectrum. He'd be a chatterbox at home or with people he felt comfortable with, but wouldn't say a word in school or to people he didn't know. He's in second grade now and is just starting to speak to classmates and teachers.

Thankfully, he never experienced bullying and his classmates were actually very protective of him. Our school also went above and beyond in accommodating and helping him.

This young woman is incredible.
 

Burt

Fight Sephiroth or end video games
Member
Oct 28, 2017
8,142
Facilitated Communication is bunk science unfortunately. Every study conducted shows the 'keyboard assistant' is influence/guiding/plagiarizing the 'thoughts' and 'expression' of those it is meant to give a voice to. FUNCTIONAL communication training with devices such as Proloquo on an iPad has empirical evidence and studies backing its validity.

"I have typed this speech with one finger with a communication partner holding a keyboard,"
if it real, get rid of the other human 'holding' the keyboard.
I'm not going to say that anything you said here is invalid, but it's wildly accusatory and obtuse in the context of the OP. To "Influence" and to "plagiarize" are completely different things, even without the context of this person being the valedictorian for their class.

I'm educated well below the bare minimum when it comes to this subject, but like, I'd be more than happy to get a primer on how the speech is illegitimate when she's a valedictorian.
 
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Deleted member 2595

Account closed at user request
Banned
Oct 25, 2017
5,475
I realise autism is a spectrum, but I hadn't heard or realised this could be a thing. Do we know why they're non-speaking or minimally speaking?

No offence intended.
It's hyper complicated. It's not just that autism is a spectrum - there are as many "autisms" as there are autistic people. Every person's presentation of it is unique. Some are combined with learning difficulties. Some are just extreme sensory or processing difficulty. We aren't in a place to know what the situation with this strong individual is.
 

Unicorn

One Winged Slayer
Member
Oct 29, 2017
9,528
I'm not going to say that anything you said here is invalid, but it's wildly accusatory and obtuse in the context of the OP. To "Influence" and to "plagiarize" are completely different things, even without the context of this person being the valedictorian for their class.

I'm educated well below the bare minimum when it comes to this subject, but like, I'd be more than happy to get a primer on how the speech is illegitimate when she's a valedictorian.
 
Oct 27, 2017
7,671
I have to admit, this makes me tear up a bit. My son is minimally speaking with ASD, but I know he is so smart and that the full breadth of what he wants to articulate is trapped inside. It frustrates him (and me) so much. He gets lots of kinds of therapy on the regular thankfully, but I'm still trying to make more headway getting him to type what he wants to say. I will never give up on him. I know he will be there where she is one day, being able to tell the full breadth of this thoughts to the world. And I will be here waiting patiently for that day to come.
 

skullmuffins

Member
Oct 25, 2017
7,418
Fuck that principal, I hope they got dirty looks after that part if they were present. I wonder what text to speech software she used; there's definitely been progress over the years at making them sound more natural.


I'm not sure what the relevance of this is to the OP, I can't find any mention of the word "facilitated" in their the article or their website.
they generally don't call it facilitated communication, because that specific method has mostly(?) fallen out of favor after it was scientifically discredited, but in her bio she says she learned to communicated using the rapid prompting method (RPM), which is similar to FC, and in her speech she says she typed it with the assistance of a communications partner, ie another human, which is a red flag. I don't want to be a buzzkill, but there are serious concerns about how much these human-assisted methods of communication are actually producing speech from the non-verbal person instead of it being directed (subconsciously or otherwise) by the assistant. In theory, it should be very easy to test (like, separately give the non-verbal person and the assistant different information and see which version is recalled), but the proponents are for some reason resistant to this kind of scientific scrutiny. Like, it's really inspiring to believe that a non-verbal child is secretly harboring a brilliant mind, full of poems and philosophical musings, etc. and they simply need a different way to express them, but if you're just unknowingly putting words in a disabled person's mouth, that's profoundly sad.

Anyway, I don't want to totally dump on this girl who I just learned about an hour ago and make it sound like she's a fraud. I don't know her specific capabilities or anything, we all know autism is a spectrum, and I don't proclaim to be an expert.
 

Unicorn

One Winged Slayer
Member
Oct 29, 2017
9,528
they generally don't call it facilitated communication, because that specific method has mostly(?) fallen out of favor after it was scientifically discredited, but in her bio she says she learned to communicated using the rapid prompting method (RPM), which is similar to FC, and in her speech she says she typed it with the assistance of a communications partner, ie another human, which is a red flag. I don't want to be a buzzkill, but there are serious concerns about how much these human-assisted methods of communication are actually producing speech from the non-verbal person instead of it being directed (subconsciously or otherwise) by the assistant. In theory, it should be very easy to test (like, separately give the non-verbal person and the assistant different information and see which version is recalled), but the proponents are for some reason resistant to this kind of scientific scrutiny. Like, it's really inspiring to believe that a non-verbal child is secretly harboring a brilliant mind, full of poems and philosophical musings, etc. and they simply need a different way to express them, but if you're just unknowingly putting words in a disabled person's mouth, that's profoundly sad.

Anyway, I don't want to totally dump on this girl who I just learned about an hour ago and make it sound like she's a fraud. I don't know her specific capabilities or anything, we all know autism is a spectrum, and I don't proclaim to be an expert.
To be clear, she isn't the fraud.
 

Ra

Rap Genius
Moderator
Oct 27, 2017
12,201
Dark Space
My son has selective mutism which mimics autism but is not on the spectrum. He'd be a chatterbox at home or with people he felt comfortable with, but wouldn't say a word in school or to people he didn't know. He's in second grade now and is just starting to speak to classmates and teachers.

Thankfully, he never experienced bullying and his classmates were actually very protective of him. Our school also went above and beyond in accommodating and helping him.

This young woman is incredible.
I suffered with this starting as a young child, but it was never noticed, diagnosed, or treated. It carried on into my adulthood and caused life to be incredibly difficult for me, basically ruined my prospects of success as a young adult. The best way to describe it would be that I always felt like I was in my head at the controls of a giant machine, but there was a wall of soundproof glass between me and everyone I was around. I would scream and bang on the glass, but no one could hear me.

People just thought I was extremely weird, because I'd just sit off to the side by myself and just... be quiet. To me it was all I knew.

So I spent all of my time by myself, talking to myself, observing others behavioral patterns and calculating extremely complex math.

I was finally diagnosed around like... 28 I think? Along with everything else that suffering in silence for decades had spawned.

Your son is incredibly fortunate to have you by his side to guide him through his journey.
 

bangai-o

Member
Oct 27, 2017
9,527
I wonder at what age the typing intervention occurred? Middle School? Elementary? I wonder if it was that one special education teacher who was willing to figure out a way to develop her language.

It's too bad IEPs in school are often taken as just litigation meetings as opposed to actually finding what works for kids with disabilities.
 

skullmuffins

Member
Oct 25, 2017
7,418
I wonder at what age the typing intervention occurred? Middle School? Elementary? I wonder if it was that one special education teacher who was willing to figure out a way to develop her language.

It's too bad IEPs in school are often taken as just litigation meetings as opposed to actually finding what works for kids with disabilities.
When she was 6 years old, her mother got in contact with Soma Mukhopadhyay, the creator of rapid prompting method (RPM), after her grandmother saw a segment on 60 minutes about it. (source)
 

ElectricBlanketFire

What year is this?
Member
Oct 25, 2017
31,831
I suffered with this starting as a young child, but it was never noticed, diagnosed, or treated. It carried on into my adulthood and caused life to be incredibly difficult for me, basically ruined my prospects of success as a young adult. The best way to describe it would be that I always felt like I was in my head at the controls of a giant machine, but there was a wall of soundproof glass between me and everyone I was around. I would scream and bang on the glass, but no one could hear me.

People just thought I was extremely weird, because I'd just sit off to the side by myself and just... be quiet. To me it was all I knew.

So I spent all of my time by myself, talking to myself, observing others behavioral patterns and calculating extremely complex math.

I was finally diagnosed around like... 28 I think? Along with everything else that suffering in silence for decades had spawned.

Your son is incredibly fortunate to have you by his side to guide him through his journey.
I'm so sorry you went that long without a proper diagnosis. My wife was the one who actually came across the term after his preschool teacher basically insinuated we were abusing him in some way to cause his "shyness." He was officially medically diagnosed with it at age 5 by a specialist in order to get extra help from the school. They knew he was smart and was advanced in comprehending and applying the lesions, but they couldn't officially test his progress without being able to speak as he attends a dual language school (Spanish and English). Like you, he's always had an interest in patterns and complex math.

I'm sure you experienced this as well as a child, but people would try to "help" him by getting in his face extra goofy like a clown or camera man trying to get a kid to smile, which was the worst way to go about it.

The first time he talked to kids he didn't know was when we were over at a friend's house for dinner and one of their kids was playing Breath Of The Wild, which my son was (and still is) obsessed with. The kid kept messing up a relatively simple puzzle and you could tell my son was DYING to say something, which he ended up doing and talked to them for the rest of the night while they played. That didn't happen again until months later.

Now he's playing baseball and laughing/joking around with his teammates.Talking to the coaches. He's made SO much progress over the past 5 years (he's 8 now).
Thank you for your kind words.
 

bangai-o

Member
Oct 27, 2017
9,527
Also bunk science, as you mentioned earlier, but needs reiterating as folks are easily duped and preyed upon.
I watched a video on it. I can't tell for sure without seeing the specialist's data sheet, but "rapid prompting" seems to be using graduated guidance (I went back to my textbook) as the prompt. Although, I'm not sure why it is called "rapid" because it is happening at regular pace.
 

collige

Member
Oct 31, 2017
12,772
they generally don't call it facilitated communication, because that specific method has mostly(?) fallen out of favor after it was scientifically discredited, but in her bio she says she learned to communicated using the rapid prompting method (RPM), which is similar to FC, and in her speech she says she typed it with the assistance of a communications partner, ie another human, which is a red flag. I don't want to be a buzzkill, but there are serious concerns about how much these human-assisted methods of communication are actually producing speech from the non-verbal person instead of it being directed (subconsciously or otherwise) by the assistant. In theory, it should be very easy to test (like, separately give the non-verbal person and the assistant different information and see which version is recalled), but the proponents are for some reason resistant to this kind of scientific scrutiny. Like, it's really inspiring to believe that a non-verbal child is secretly harboring a brilliant mind, full of poems and philosophical musings, etc. and they simply need a different way to express them, but if you're just unknowingly putting words in a disabled person's mouth, that's profoundly sad.

Anyway, I don't want to totally dump on this girl who I just learned about an hour ago and make it sound like she's a fraud. I don't know her specific capabilities or anything, we all know autism is a spectrum, and I don't proclaim to be an expert.
It seems to come down to how loosely one is using the definition of "typed". If I see the phrase "I have typed this speech" verbatim, I'm gonna assume that she actually typed that but like you say, I'm also not sure why a second person is even still necessary.

RPM seems to be mostly a certification grift with dubious results that essentially acts like typing using the predictive keyboard on a phone. I'd much rather put scrutiny on this "Communication 4 All" nonprofit since it's not clear what they're gonna do with my money besides "leveraging the power of film, music, and moving testimonials".
 

Bengraven

Member
Oct 26, 2017
26,759
Florida
The speech is beautiful, but FUCK this principal. It takes so much strength and effort to overcome organic and environmental barriers. Even when those barriers are the words of "leaders."

Trying not to bring politics into this but being Florida I have some strong opinions about members of the community that likely also looked down on this. And all probably voted for DeSantis.

A week from now we'll have him signing a bill that said autistic children can't become valedictorian and have a few autistic kids by him to support his decision.