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Oct 25, 2017
12,457
I've been suffering with numbness and pins and needles in my feet for years and it's been getting worse over time but never had insurance to see a doctor about it. Finally got insurance recently and was diagnosed with Peripheral neuropathy last week. Still have to see a neurologist to see the cause of it but Dr. gave me gabapentin which doesn't seem to help at all for the pain. Just wondering if anyone else here deals with this?
 
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Deleted member 13645

User requested account closure
Banned
Oct 27, 2017
6,052
When I herniated a disc they gave me Gabapentin. It didn't do anything at first, but after a few weeks of being consistent it helped. I think it takes time to help.
 

Fiction

Fanthropologist
Member
Oct 25, 2017
6,727
Elf Tower, New Mexico
I've been suffering with numbness and pins and needles in my feet for years and it's been getting worse over time but never had insurance to see a doctor about it. Finally got insurance recently and was diagnosed with Peripheral neuropathy last week. Still have to see a neurologist to see the cause of it but Dr. gave me gabapentin which doesn't seem to do to help at all for the pain. Just wondering if anyone else here deals with this?
Have they tested your blood sugar?
 

echoshifting

very salt heavy
The Fallen
Oct 25, 2017
14,699
The Negative Zone
Yeah I have had neuropathic pain in my abdomen, chest, back and one of my legs for fifteen years, it is fucking awful but I've learned to live with it.
 

Tokio Blues

Member
Sep 14, 2018
551
I have a discopathy, i suffer from pains from time to time in my back, probably it will get worse over the years, but I can go to the gym and work in peace, i think.
 

aspiegamer

Member
Oct 27, 2017
10,459
ZzzzzzZzzzZzz...
Gabapentin isn't really a straight pain killer so much as it's a moderator of those types of nerve signals. You might get put on a higher dose... 1600 or 2400mg a day is common. It can also take some time to get working efficiently. Take it religiously, and, yeah, it's a lot of pills total.

That's really all a general practitioner is probably going to do. You most likely just have to wait out your time to see a neurologist, unfortunately. I had a similar situation as you with facial pain and numbness related to headaches last year where starting some gabapentin helped a bit and I was relatively lucky and only had a 4 month waitlist.
 

laoni

Member
Oct 25, 2017
4,712
I have peripheral neuropathy in my fingers from chemotherapy. It's slowly starting to recover, but, the tips are often numb and pins and needle-y if any pressure gets put on them (so I keep my nails long to create a bit of a buffer)

I've also noticed some neuropathy on my thighs after the latest treatment, down the outside of my right leg I have constant prickling/pins and needles, and a patch on my left leg burns white hot if the skin twists or gets stretched... Like when I stand up.

It's not anything I need medication for, but, I've lost a decent amount of hand dexterity because of the peripheral neuropathy in my hands (improving, though! I used to not be able to pick up a playing card if it wasn't sleeved with a textured back)

I've been on Lyrica for nerve pain before, and it worked super well for me, but did take a few days to a week before it kicked in at full force
 
Jan 31, 2018
1,430
Guessing the doctor ran a pile of tests and ruled out a number of things like, chronic alcoholism, infections, vitamin deficiency (specifically B12 or vitamin E), diabetes, MS, peripheral artery disease, medication side effects and so on to get to fibromyalgia. It's not a great diagnosis but it's still a diagnosis. I've been dealing with neck issues for the past five years that have lead to all sorts of physical manifestations and still don't have a solid answer despite seeing a ton of specialists. One did give me Duloxetine (Cymbalta) because they thought I was depressed (yeah, who wouldn't be frustrated and moody when they're dealing with chronic pain). Helped with the headaches but not so much with the bilateral ulnar neuropathy.
 
Oct 25, 2017
895
Guessing the doctor ran a pile of tests and ruled out a number of things like, chronic alcoholism, infections, vitamin deficiency (specifically B12 or vitamin E), diabetes, MS, peripheral artery disease, medication side effects and so on to get to fibromyalgia. It's not a great diagnosis but it's still a diagnosis. I've been dealing with neck issues for the past five years that have lead to all sorts of physical manifestations and still don't have a solid answer despite seeing a ton of specialists. One did give me Duloxetine (Cymbalta) because they thought I was depressed (yeah, who wouldn't be frustrated and moody when they're dealing with chronic pain). Helped with the headaches but not so much with the bilateral ulnar neuropathy.
Duloxetine is often used to treat chronic or neuropathic pain, even for those who aren't depressed, so that's probably why you were prescribed it. Research also suggests that depression increases our sensitivity to pain, so it's often helpful to those who are depressed.
 

Sean

Member
Oct 25, 2017
1,591
Longview
Yeah, it sucks. Basically from below my knees down through my feet are always on fire. It sucks to wear anything there. Between that and all my other shit, like arthritis and nerve damage, my resting pain level is never below like a 7. Nothing works except Opiates. Ran through every single other drug on the list and even the maximum allowed dose of gabapentin does nothing for me. No one will prescribe me any opiates, so yeah. It's just great.

Marijuana helps take the edge off my stuff a little bit, but it's no pain killer. Sometimes I can get a spare hydromorphone from someone, but as they've restricted those more it's gotten pretty rare for me to do so. That's about the only time I get to feel any relief. I really don't remember a time in my life where I wasn't hurting at this point.
 
Dec 16, 2017
1,998
I've been suffering with numbness and pins and needles in my feet for years and it's been getting worse over time but never had insurance to see a doctor about it. Finally got insurance recently and was diagnosed with Peripheral neuropathy last week. Still have to see a neurologist to see the cause of it but Dr. gave me gabapentin which doesn't seem to help at all for the pain. Just wondering if anyone else here deals with this?
It's a slow road ahead. Don't read anything that makes you self diagnose. Writing down your symptoms before seeing the neurologist will likely be helpful. There's a lot of reasons that people can develop neuropathy. Good luck!
 
Jan 31, 2018
1,430
Duloxetine is often used to treat chronic or neuropathic pain, even for those who aren't depressed, so that's probably why you were prescribed it. Research also suggests that depression increases our sensitivity to pain, so it's often helpful to those who are depressed.

Oh I know, I was just taking part in some passive aggressive complaining about one of the doctors I saw. He specifically thought my symptoms were the result of depression/anxiety that was manifesting itself in different ways and was slightly put off when I told him the medication hadn't changed my mood (after being on it for a couple of months).

Then again, neuropathic pain still isn't very well understood so, can't be too surprised. At least, he was trying to help.
 

amon37

Member
Oct 27, 2017
2,995
I do mildly in my feet from diabetes because I was an idiot and didn't get it taken care of. I took loads of gabapentin for over 1 and half years and nothing. Since I live in a place where shoes and socks are optional over 90% of the time, I just stopped taking it.
 
Oct 25, 2017
895
Oh I know, I was just taking part in some passive aggressive complaining about one of the doctors I saw. He specifically thought my symptoms were the result of depression/anxiety that was manifesting itself in different ways and was slightly put off when I told him the medication hadn't changed my mood (after being on it for a couple of months).

Then again, neuropathic pain still isn't very well understood so, can't be too surprised. At least, he was trying to help.
It would have been better if he wasn't so aggressive with the depression/anxiety angle because it tends to put patients on the defensive if they aren't experience depression or anxiety. Even if he did suspect depression/anxiety as a contributing factor, he could have put more emphasis on the fact that drugs like duloxetine aren't solely for depression/anxiety; they're sometimes helpful in treating pain in patients with no depression or anxiety at all. but yeah, like you said, at least he was trying to help, and it was a legit medication to trial, even if the reasons for trialing it may be suspect.
 

Rei no Otaku

The Fallen
Oct 25, 2017
3,339
Cranston RI
My father has it in his foot from a a blockage that stopped blood flow to it. Unfortunately from what the doctor told him it's never really going to get better. He just has to learn to live with it and manage the pain. He got a medical marijuana card and that seems to help him a bit.
 

Christian

Member
Oct 25, 2017
9,636
I have it in my abdomen, due to repeated abdominal surgeries. It is awful, and there is really no effective way to treat it. For years, I was on a regimen of oxycodone, neurontin (gabapentin), and a cocktail of antidepressants and it fucked my mood up considerably without actually completely treating the issue. Good luck to you. It's not fun, and I sympathize with you wholeheartedly. I'm on medical marijuana now, off all the other stuff, and it works a lot better for me, but it still has its drawbacks.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
Anyone who has it in there feet how do you feel about driving? For me it feels unsafe and I rather my fiance drive than me..I can't feel anything like if my foot is on the pedal or pressure pushing down on pedal etc
 
Oct 27, 2017
10,660
This is what I hate about doctors. They won't use a working treatment because of potential for abuse but hurting people will seek relief. At least monitoring opiate user is better than forcing the patient to use street drugs or worse.
 

JAGMASK

Member
Jan 3, 2018
422
Yeah I had/have it in my hands and feet from a B12 deficiency that I had for about 8-9 months last year. I'm recovering quite well though, I can drive comfortably again and wearing shoes doesn't hurt much any more. I've just got to stay patient and I should pretty much recover enough to forget about it.
 

Christian

Member
Oct 25, 2017
9,636
This is what I hate about doctors. They won't use a working treatment because of potential for abuse but hurting people will seek relief. At least monitoring opiate user is better than forcing the patient to use street drugs or worse.

The thing that really pisses me off about it is that the doctors were responsible for the epidemic to begin with, by irresponsibly prescribing opiates at the behest of pharmaceutical companies. Rather than learning a reasonable lesson, they've swung back to the other extreme and won't find a rational middle ground.

I had to see a pain management group for my neuropathy because it is severe and none of my other doctors wanted to be responsible for monitoring my opiate intake. I was fine with it. But even the pain management doctors were super stubborn and super accusatory about me wanting to try to treat my pain. You walk in any doctor's office or hospital with pain complaints and they automatically think you're a drug-seeker. I was subjected to repeated drug tests and scrutiny. One time out of literally dozens of drug tests, ONE TIME, my numbers were SLIGHTLY off and I got a message from the pain management office that they were dropping my treatment because I was abusing the medications. I called and spoke with the doctor and they lifted the ban, but it's not something that someone that's already suffering from stress and anxiety from multiple sources needs to deal with.
 
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Oct 26, 2017
8,686
My father deals with it as a result of chemotherapy. Unfortunately not much can be done according to his doctors. He's tried all kinds of alternative stuff - acupuncture, hyperbaric chambers - with limited affect.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
Yeah I had/have it in my hands and feet from a B12 deficiency that I had for about 8-9 months last year. I'm recovering quite well though, I can drive comfortably again and wearing shoes doesn't hurt much any more. I've just got to stay patient and I should pretty much recover enough to forget about it.
I've read about B12 being a cause but it's mostly common in vegans and people who've had weight loss surgery. Are you any of those? I haven't had blood work to test for this yet though I am seeing a Dr. tomorrow so maybe I should ask.
 
I would stick with Gabapentin for a bit if I were you, the body needs some time to get adjusted to it and for it to get the most out of the medication. It helped me quite a bit during a multiple sclerosis attack where I had a lot of trouble with numbness, pins and needles, spasms, pain and stiffness in the arms and legs.

L'hermitte's sign and MS Hug are the two most debilitating neuropathic pain disorder I've had and felt and Gabapentin helped me through it. If this mediation alone isn't enough, your doctor might refer you to other similar medication that could be a better fit for you. Clonazepam and Baclofen also helped me through other similar situations.

And yeah, absolutely don't drive if your capabilities are negatively impacted. Seems like a given.

Neuropathic disorders are really tricky to pinpoint the cause or reason of, so patience with your neurologist is key. I found that doing research of my own and being open with my findings and fears with my neurologist helped quite a bit too. Have you done any Magnetic resonance imaging? (MRI)? Have you gotten a spinal tap? Those and bloodtests are usually enough to discard any other potential sources.

Hope it all gets better for you, good luck!
 

Pickman

Member
Nov 20, 2017
2,266
Huntington, WV
I took gabapentin long term for nerve damage from a surgery on my leg when I was younger. It definitely takes a few days to start working, but when it does you'll live a much better life for it. They don't prescribe it here in WV because it apparently is used by heroin junkies to extend/enhance their highs, which is absolute horseshit.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
I would stick with Gabapentin for a bit if I were you, the body needs some time to get adjusted to it and for it to get the most out of the medication. It helped me quite a bit during a multiple sclerosis attack where I had a lot of trouble with numbness, pins and needles, spasms, pain and stiffness in the arms and legs.

L'hermitte's sign and MS Hug are the two most debilitating neuropathic pain disorder I've had and felt and Gabapentin helped me through it. If this mediation alone isn't enough, your doctor might refer you to other similar medication that could be a better fit for you. Clonazepam and Baclofen also helped me through other similar situations.

And yeah, absolutely don't drive if your capabilities are negatively impacted. Seems like a given.

Neuropathic disorders are really tricky to pinpoint the cause or reason of, so patience with your neurologist is key. I found that doing research of my own and being open with my findings and fears with my neurologist helped quite a bit too. Have you done any Magnetic resonance imaging? (MRI)? Have you gotten a spinal tap? Those and bloodtests are usually enough to discard any other potential sources.

Hope it all gets better for you, good luck!
The only thing I've done so far is the EMG test where they told me I have neuropathy. I'm actually going back to see the Dr who ordered the test tomorrow for a followup.
 

doncortez77

Member
Oct 27, 2017
197
Orlando, FL
I dont have it currently but it was one of the side effects when I was going through my chemo for Leukemia in 2017. It felt like I was waking on a bed of nails whenever I had to walk anywhere.
 

JAGMASK

Member
Jan 3, 2018
422
I've read about B12 being a cause but it's mostly common in vegans and people who've had weight loss surgery. Are you any of those? I haven't had blood work to test for this yet though I am seeing a Dr. tomorrow so maybe I should ask.

Yes I was vegan for that period. I should have mentioned that sorry. I've read that some people can develop an inability to absorb B12 from their food properly, so it might be worth bringing it up.
 
The only thing I've done so far is the EMG test where they told me I have neuropathy. I'm actually going back to see the Dr who ordered the test tomorrow for a followup.
Any folowups with a Neurologist planned?

In my stay at the hospital when I got diagnosed, I was lucky enough to be followed with both a general practitionner and a neurologist, so all of my tests (a few MRIs, a bunch of blood tests and a spinal tap) were done in the span of a few days. In my experience I found that the neurologist is definitely key for things to move forward quite rapidly, staying overnight also helped a lot as to not lose "prioritization" though.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
Any folowups with a Neurologist planned?

In my stay at the hospital when I got diagnosed, I was lucky enough to be followed with both a general practitionner and a neurologist, so all of my tests (a few MRIs, a bunch of blood tests and a spinal tap) were done in the span of a few days. In my experience I found that the neurologist is definitely key for things to move forward quite rapidly, staying overnight also helped a lot as to not lose "prioritization" though.
My primary care Dr put in a referral to the neurologist on Monday but I haven't heard from them yet to get an appointment.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
To anyone who has it in their feet, can you bend your toes? Just curious cause I can no longer bend my big toes at all and even the other ones are limited and difficult to move. Neurologist appointment was postponed due to COVID19 to the end of next month.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
Same. He supposedly isn't diabetic but he consumes a shitload of liquid candy (soda) and even he's convinced that might be a contributor, from some stuff he's read. He also has Parkinsons so it's a double whammy.

I've never heard/read of soda or sugary stuff being a cause. Also, a quick google search:
Recent studies have reported that peripheral neuropathy (PN) is common in patients with Parkinson's disease (PD) and raised the possibility that levodopa neurotoxicity is the main culprit.
bmcneurol.biomedcentral.com

Small (autonomic) and large fiber neuropathy in Parkinson disease and parkinsonism - BMC Neurology

Background Recent studies have reported that peripheral neuropathy (PN) is common in patients with Parkinson’s disease (PD) and raised the possibility that levodopa neurotoxicity is the main culprit. Methods We evaluated the presence of large & small (autonomic) fiber PN in 54 consecutive...
 

McScroggz

The Fallen
Jan 11, 2018
5,971
I'm sorry to hear that OP. Hopefully the root cause is something not too serious. It sounds silly but get in the habit at legitimately inspecting your feet at least once in the morning and/or at night.
 

Deleted member 17092

User requested account closure
Banned
Oct 27, 2017
20,360
Yeah it's a Celiac symptom for me. Gluten free diet has fixed it. Op if you have any stomach issues may want to get a Celiac blood test. Doctors never test for it unless you ask them to.
 

shiba5

I shed
Moderator
Oct 25, 2017
15,784
I've been suffering with numbness and pins and needles in my feet for years and it's been getting worse over time but never had insurance to see a doctor about it. Finally got insurance recently and was diagnosed with Peripheral neuropathy last week. Still have to see a neurologist to see the cause of it but Dr. gave me gabapentin which doesn't seem to help at all for the pain. Just wondering if anyone else here deals with this?

Gabapentin and I don't get along. I have severe, chronic nerve damage and was on 2700mg of Gaba a day. It never helped and it made me forget things like left and right. I could barely follow a conversation and the worst part was that I knew it was happening. The time released version sent me into massive depression within 2 days of trying it.
For me, the only thing that worked was a spinal stim and Oxycontin.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
Gabapentin and I don't get along. I have severe, chronic nerve damage and was on 2700mg of Gaba a day. It never helped and it made me forget things like left and right. I could barely follow a conversation and the worst part was that I knew it was happening. The time released version sent me into massive depression within 2 days of trying it.
For me, the only thing that worked was a spinal stim and Oxycontin.
I started lyrica this week...75mg 2x daily...doesn't seem to help either unfortunately =\
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
It sounds silly but get in the habit at legitimately inspecting your feet at least once in the morning and/or at night.
For what exactly? When I went to get the nerve conduction test beginning of this year it was really only 1 of my big toes I couldn't move now it's both and even the rest are difficult and barely move at all.
 

McScroggz

The Fallen
Jan 11, 2018
5,971
For what exactly? When I went to get the nerve conduction test beginning of this year it was really only 1 of my big toes I couldn't move now it's both and even the rest are difficult and barely move at all.

Its likely not something that will happen to you now, but one of the biggest issues with peripheral neuropathy is if somebody gets a cut or sore that they don't feel. It leads to infections. Now, this is more of an advanced thing, but if your symptoms are getting worse making it a habit to check would be a good idea.
 

RedMercury

Blue Venus
Member
Dec 24, 2017
17,649
I have a hereditary peripheral neuropathy, not fun! Gaba and all that stuff did nothing for me really, I just take narcotics.
 
OP
OP
fluffydelusions
Oct 25, 2017
12,457
Its likely not something that will happen to you now, but one of the biggest issues with peripheral neuropathy is if somebody gets a cut or sore that they don't feel. It leads to infections. Now, this is more of an advanced thing, but if your symptoms are getting worse making it a habit to check would be a good idea.
Ah ok.
I have a hereditary peripheral neuropathy, not fun! Gaba and all that stuff did nothing for me really, I just take narcotics.
Yeah, I smoke weed at night to help me sleep but it wears off usually around 2am unfortunately so I end up taking some sleeping pills or just smoking more.
 

Fushichou187

Member
Nov 1, 2017
3,309
Sonoma County, California.
Have you been tested for MS, op?

My dad has it. He's been having a tough time with it...

My dad had it bad, and it started to really ramp up in his late 40s right as he got laid off (9/11 related) and was a total disaster in every way possible. I hope your dad had better doctors than mine did and that they don't rule anything out in terms of what it could stem from, and how best to treat it. All doctors did for my father was give him drugs that made him feel & act high or really, really drunk... and that was it.